Massengill, Nichole

11 recommendations and reviews from 5 people

• Referral from February 29, 2020
  

  Erika H. asked:

  Hi everyone, we are still trying to get a referral for an esophageal dilation. We need to provide the actual name and address of the doctor and hospital of who will do it. Can someone PM that information please? We live close to Washington DC, but I don't mind driving to Pennsylvania or Ohio. Thank you.

  

  Linda M. replied:

  For Ohio you can call on Monday the EB Center 5136362009 and they can help you ! I know there now is EB Center in Philadelphia Pa but I do not know the numbers there

  

  Jennifer G. replied:

  Dr. Rymeski did Cole’s dilation at CCHMC last year. Dr. Farrell was the GI dr during EB clinic visit. Contact the EB Clinic and Jean will help you. 513-636-2009

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• Referral from April 19, 2015
  

  Rachel N. asked:

  ******URGENT****Kind of a emergency friend of mine has eb and at OSU in Columbus Ohio. .they are not understanding how to care for her using 1 layer of xeroform and she is stuck they say know what doing but they are not nice . Anyone know of a eb doctor here?

  

  Tyler C. replied:

  Contact the Epidermolysis Bullosa (EB) Center for more information or if you are a patient and have questions. Bobbie Sandrin, Epidermolysis Bullosa Center coordinator, 513-636-2009 ebcenter@cchmc.org Emergencies For emergencies, contact the Dermatology Division at Cincinnati Children’s and ask for the resident on call, 513-636-4200.

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• Referral from November 5, 2013
  

  Kattie T. asked:

  Can someone please give me names and numbers of Doctors in Cincinnati so I can get Heather an app.. Thanks

  

  Carmen C. replied:

  For an Outpatient Interdisciplinary EB Clinic appointment, call: 513-636-2009, but is a few months wait for new patients, unless your child get admitted through the ER. It may be faster to schedule a single doctor appointment. For example: for General Surgeon only (Dr. Azizakhan) you can call 513-636-4576 for a consult. For the Dental Scheduler, call Marcie at 513-636-4629.

  

  Linda M. replied:

  Call EB center 5136362009 they can help with appt and letters if necessity to get health coverage too.

  

  Jennifer B. replied:

  call bobbie she handles all of that 513 636 2009

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Recommendations from Jennifer B.

• Referral from April 29, 2015
  

  Taylor B. asked:

  Has anyone ever had a Oral Commissurotomy? It's a surgery to widen your mouth. I really want to have it done because I want dentures. Any opinions or suggestions are greatly appreciated! Also I have RDEB HS. Thanks!

  

  Jennifer B. replied:

  I only had the front corners of my mouth done, although it was supposed to be more than that but the surgeon was in over his head and didn't tell me so until after the procedure...having said that it was done in Cincinnati at children's BUT the oral surgeon was an adult oral surgeon from UC as pediatric dentists can't work on adults...I would absolutely reccomend the CCHMC dentists...the eb center here is state of the art and the drs and dentists are amazing...If interested call Bobbie 513 636 2009

  

  Jennifer B. replied:

  Cincinnati Children's Hospital and Medical Center. This is where the eb center is in Cincinnati. Call Bobby at 513 636 2009 and she can answer any questions you may have about the center and what you would need to do to be seen :-) also, feel free to private message me any questions you may have about the eb center here, as well as my procedure :-)

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• Referral from December 10, 2014
  

  Debra B. asked:

  My name is Debra Scales Babineau I have 2 adult children with RDEB, my son is 33 years of age and my daughter is 31 our biggest problem is coming up with doctors within the Ohio. We lived between Columbus and Cinn. and they have outgrown children's hospitals. My daughter needs a throat/dilalation specialist soon, and are not having any luck. Can anyone help????

  

  Jennifer B. replied:

  Debra Cincinnati children's hospital (CCHMC) will treat them. I am 41 with rdeb, inversa and moved to cincinnati 5 yrs ago for those drs. Call bobbie at 513 636 2009 to ask a out setting up clinic appts...feel free to pm me if you have any questions, im happy to help if I'm able :)

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• Referral from June 3, 2013
  

  Amanda P. asked:

  OK well the time has come that kohen needs to go back to the dentist. His two back bottom back teeth really need to come out! They are decaying so bad that they are tearing his mouth up. I want to take him back to Cincinnati. Does anyone know who I can contact at the children's hospital?

  

  Jennifer B. replied:

  i would also suggest dr callen ;) if u cant get her call bobbie eb center coordinator 513 636 2009...try dr callen first tho ;)

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• Referral from February 29, 2012
  

  Kattie T. asked:

  Hello Everyone, My daughter has eb and her fingers are webbed together and we are thinking about getting them opened. She is 8 years old. . I would really appreciate any advice on havin it done including any suggestions on where to have the surgery performed. We live in Mississippi and our Dr. suggested that we have it done by a Dr. that has performed that surgery before... Thanks...

  

  Jennifer B. replied:

  Dr. Azizkhan at Cincinnati Children's is an excellent surgeon and an EB specialist...call Donna Engells at 513 636 2009 (she's the EB clinic coordinator) and explain your situation and she will let you know the steps to take : )

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