22q Conference

2 recommendations and reviews from 2 people

• Referral from June 16, 2012
  

  Penny B. asked:

  hi guys we have now booked Jack and my flkioghts just need to book hotel and confence over next few days all a bit last min a charity helped fund our flights so now we can come which is just awesome ..........a friend on here advised that there was a hotel for $40/$59 a night know the 22Q/ Disney ones are $150/79 a night any tips info greatly appreciated many thanks xx

  

  The F. replied:

  Look on the 22 qconference.com website ... Disney has Value Hotels ... not sure what the rate is but it will be less than the HQ Hotel.

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• Referral from April 4, 2011
  

  Kristy M. asked:

  I am so happy this page is here. My daugher is 5 1/2 and she has 22 q. She has a lengthy medical history, as I am sure most people in here do. She was recently diagnosed with a pretty significant scoliosis. If anyone has had the same diagnosis that is related to 22q please let me know. I'm just trying to get some information on the treament and such. I would like to hear your story.

  

  Donna M. replied:

  If you email info@22 q.org Carol Cavana, the Foundation President can tell you all about it as it has pertained to her son. Yes, it is quite commonly associated with the 22 q11.2 deletion syndrome. My best, Donna

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