Muscular Dystrophy Association

4 recommendations and reviews from 4 people

• Referral from May 16, 2016
  

  Marjorie A. asked:

  Looking for a place to do a fundraiser in Sulphur to raise money for my son with Muscular Dystrophy. Any suggestions?

  

  Lelan S. replied:

  https://www.mda.org

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• Referral from November 9, 2015
  

  Jennifer F. asked:

  Has anyone built (or remodeled) their house to be wheelchair accessible? Do you have any sites for plans, suggestions, etc? Please share the link if possible. TIA

  

  Muscular A. replied:

  Jennifer, if you reach out to your local MDA office, they might have resources or other families in your area you could talk to. Just go to MDA.org and type your zip code into the green box that says "MDA in Your Community." Let us know if you have any more questions.

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• Referral from September 9, 2014
  

  John A. asked:

  Has anyone here heard of a disease called myothemia gravis?

  

  William S. replied:

  It's not rare. Go to MDA.org to rad some info on it.

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• Referral from August 24, 2013
  

  Muscular s. asked:

  REPOSTING THIS HERE SO ALL CAN SEE. CAN ANYONE HELP PLEAS? Bridgid Kelleher Hi everyone! Seeking advise. I've been having a terrible time trying to find a doctor who will treat a person with MD. I've spent the last several months researching, calling, and seeing doctors. They all turn me away saying that I'm too out of their league. I've contacted upwards of 20 doctors. I've recently transitioned from pediatric to adult and it seems most doctors who specialize in MD are pediatricians. I'm feeling very discouraged and don't know what to do next. Has anyone had a similar experience or better yet, does anyone know of any doctors who see patients with MD in the New York or New Jersey area? Specifically, I'm looking for a neurologist and pulmonologist. Thanks!

  

  Dorothy R. replied:

  Contact MDA http://mda.org/office/new-jersey New Jersey MDA Office www.mda.org Name: Gloria EnglishEmail: genglish@mdausa.org201 843-4452

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