Tuberous Sclerosis Alliance

3 recommendations and reviews from 2 people

• Referral from April 7, 2014
  

  Missy L. asked:

  I'm looking for a new neurologist for my daughter who has tsc does ne one know a good one in the Chicago area... ???

  

  Gwen P. replied:

  There is a clinic in Chicago. Contact info on www.tsAlliance.org

  -1
  View full conversation on Facebook

Recommendations from Susan M.

• Referral from December 17, 2014
  

  Jess N. asked:

  I live in a small town just outside Tulsa OK. My daughter is 17 and has seen dozens of specialists and neurologist. But we have never taken her to a Tuberous Sclerosis clinic. Anyone know of any near here? Any benefits to going to TS clinic instead of just a neurologist?

  

  Susan M. replied:

  http://Tsalliance.org/ has a list of clinics and can certainly tell you beneifts . Any time you see a team of specialists who see lots of TSC patiemts you. Will get better care because they have more experience , interest and research under their belts and are approved by the tsalliance .. They care! And if your kids case is challenging it's the place to be , good luck

  

  Susan M. replied:

  Maria wright the http://TSAlliance.org/ can help you . There is a list of clincs on the webaite as well as lots of useful info to help u , your family and caretakers understand Tsc ..they are there just to help u !

  -1
  View full conversation on Facebook