A C O R Inc

7 recommendations and reviews from 3 people

Recommendations from Mary C.

• Referral from August 22, 2015
  

  Lin A. asked:

  Does anyone know where we can get pazopanib for a 5yrs old? With ewings went to brain, we cannot get on the trial at rhe children's. And MD Anderson is not giving this chemo either. Please let me know where we can get this chemo treatment. Thanks!

  

  Mary C. replied:

  Lin AN PLEASE POST THIS INQUIRY AT Ewings Sarcoma Survivors AND acor.org, SCROLL DOWN AND FIND CHILDHOOD CANCER AND THEN FIND SUB-TITLE EWING'S SARCOMA. YOU WILL FIND AN ANSWER.

  

  Mary C. replied:

  HELLO Lin AN I SENT YOU A PRIVATE MESSAGE..THE acor.org SITE RESPONDED!

  

  Mary C. replied:

  http://www.acor.org/ Browse the general list of ACOR online communities...Childhood Cancers Ewing's Sarcoma http://www.acor.org/listservs/join/48...THEN YOU HAVE TO JOIN THE GROUP, SIGN UP

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Recommendations from Amy W.

• Referral from October 6, 2014
  

  Julie F. asked:

  Anyone know of any success stories of someone with inoperable lung mets?

  

  Amy W. replied:

  You may find some responses on the osteosarcoma page at acor.org

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• Referral from August 9, 2014
  

  Brittany B. asked:

  Im trying to do research on doctors that remove lung nodules. Does anyone have any good advice or contact info?

  

  Amy W. replied:

  Brittany Buck join the osteosarcoma page at acor.org for some solid, serious advice! (MD Anderson in Houston is a top choice)

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Recommendations from Evelyn W.

• Referral from September 22, 2014
  

  Stacy W. asked:

  Anyone originally have limb salvage then gone on to have rotationplasty? I'd really like to know if that's even an option. My surgeon doesn't perform rotationplasty and didn't have an immediate answer for me.

  

  Evelyn W. replied:

  if you are not on the osteosarcoma group.. go to www.acor.org and sign up for the osteo group.. there are many people there who can help and there are a couple of the best drs on the group as well and they can help you out to answer questions

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• Referral from November 21, 2012
  

  Akanksha R. asked:

  can anyone give me the contact details of good osteosarcoma specialists...

  

  Evelyn W. replied:

  if you are looking in the States.. yes Pete Anderson is one of the top ones.. in Canada Dr. Blackstien and Dr Wunder in Toronto.. depending on where you are... go to www.acor.org and sign up for the osteosarcoma group.. there are people from around the world who can give you all the info and lots of great doctors depending on where you are..

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