How can a child be granted disability since birth due to the child having a congential heart disease and then 9 yrs later be told the child is still disabiled and has some limations but since the child physically marked and severely limited no longer qualifies for disability. And say the state may have programs to help with the childs medical bills.And base the decision on a school report, a dr she sees once a yr, a hospital she hasn't been to in 3 yrs, & the dr who sees her monthly wasn't even mentioned in the letter. Gotta find a good a lawyer, any suggestions?