I'm reaching out to my Facebook family to find out if anyone knows of a Neurologist? My wife is really poorly and I am desperate to find someone who can help. If...
Rachel M. replied:
Hope Sue is sorted. Wishing her well asap xx
Natalie S. replied:
Michael Gross is the best at Clementine. Sending love x
Randie S. replied:
TeeCee Tony Cohen. No complaints. Thank you.
Melanie L. replied:
Sorry to hear Sue's not well. Got amazing neurosurgeon if that's what you need? Otherwise you should go to London Neuro Hospital next to Great Ormond Street.
Alan K. replied:
Jeez Warwick mate!....I'm thinking of you, your wife and family!...Wishing her a swift recovery!
Hello everyone. A friend kindly pointed me in your direction, as I have a question about my 8 year old Son. Zak has profound and multiple disabilities, including...
The U. replied:
Hi Mags, we're really sorry we haven't replied sooner, we missed your post and have only just spotted it. You might want to give our helpline a call for info and support. You can call them on 020 7793 3650 or email support@dystonia.org.uk They're open Mon-Fri 10 am-4 pm.
Does anyone know of or know personally or know who is the best paediatric neurologist in London? Need details urgently.
Michele B. replied:
Hi. I don't know you personally but heard from Andrea. This is one of the best I used for my baby boy when i was in London. The best neurosurgeons in London are at Great Ormond St hospital. Here is the name of one of the more senior: Mr Dominic Thompson. 020 7405 9200 x5425 Good luck
Sunaina S. replied:
Satish, we are very worried. Told Beena to call Ian Hill at Porland. Also, just send someone to Great Ormond Street Hospital which is the Uk's leading children's hospital. They will definitely have a paediatric neurologist on call. We are praying.
Thank you for adding me! I'm happy to find a group whose members have experience with migraines. After being sick for so long with a different disease I've learned that...
Marie A. replied:
I found the information on this pdf really helpful.Its has the link to the site the neurologist uses.All the meds and treatments Uk version but Im sure you can find US versions http://www.migraineclinic.org.uk/medical-proffesionals/bash-guidelines/
Hi Everyone, I'm here on behalf of my Love! He suffers of CFS and I'm desperate! I don't know what to do and how to cope with his illness. He went to see his GP many...
Sara W. replied:
The Optimum Health Clinic in London. They really helped me!!
Eleanor R. replied:
Hi Rilana, first, a big hug to you and your partner, it's tough on both sides and it's lovely that you support him. I presume the CFS centre he's being referred to is the Maudsley/King's one which is just down the road from Elephant and Castle in Camberwell. It does take a long time unfortunately as they are really over subscribed and under funded, it's worth though giving them a call to see how far his case has gone. I waited ages only to find out my damn GP's office hadn't put my form in. While they are lovely, they only offer CBT and graded exercise therapy. I started on the latter and it really helped but have now switched to CBT which has helped me cope with the mental mind-storm being chronically ill throws up. The book someone mentioned earlier - Overcoming Chronic Fatigue - is written by them (my CBT is with Mary). Sadly though, they don't do a lot of tests, however when I said the thing I was most scared I had was multiple sclerosis, they quickly got me an appointment with a neurologist who did do a mountain of blood tests and a brain scan (found nothing though). It's worth saying something like this so you can be referred a lot more quickly.
Susan P. replied:
Hi Rilana, hard to see loved ones suffering. There is a Dr. Maurice Murphy at St. Bartholomew's Hospital, Smithfield, EC1., which should be available for you via the NHS - he is a Neurologist and works in the ME Centre there - S.
It depends what the issue is. I use David Werring he currently only consults from Queens Square in their private suite. He is an absolute gentleman and his care is amazing. He has even picked up the phone directly to speak to me rather than getting his secretary to call. I highly recommend him. I have seen him for issues with migraines.
Robyn S. replied:
Jeremy Reese is excellent
Dan V. replied:
Dr Raj Kapoor....will inbox u. X
Dani B. replied:
Dr Paul jarman is wonderful, works at garden hospital on Saturday and queens square x
Hi Everyone, I wonder if any of you have any advice. I was diagnosed with M.E. some 10+ years ago and have had it for at least 15 years. However ive never really felt I...
Annette B. replied:
The system of diagnosis in the UK is so bad that I would hesitate before accepting one now (and 10 years ago) depending on the person who dx'ed you. I get the loss of feeling in my legs. Do your legs look any different and are they hot or cold? You co uld start with Dr Murphy at the Royal Free if you haven't seen her. Obvious disclaimer is that she was part of the PACE trial group and supports NICE guideline (bad). I'm guessing she would be able to run some immunological tests. Hopefully others will have a better idea.
Annette B. replied:
Thanks Sioux. Hopefully someone else will know a better London doctor. There is Dr Main close to Ladbroke Grove and a few others. If going private there is Dr Williams Weir. I wonder if he could compile a list of tests or something for you. It's so bad in London I don't know who to suggest. I have the same problem. Burning up but cold to the touch sometimes. I've had to see private docs