Thread topic: Family Doctor in McLean, VA

Ehlers-Danlos F. answered: You may be able to find someone through these resources. EDNF Physicians Directory http://www.ednf.org/index.php?option=com_sobi2&sobi2Task=search&Itemid=99999999 The next two don't have contact information, but if you see someone you'd like to contact, Google them: EDNF Professional Advisory Network http://www.ednf.org/index.php?option=com_content&task=view&id=21&Itemid=213 Speakers for 2011 EDNF National Conference http://www.ednf.org/index.php?option=com_content&task=view&id=2068&Itemid=88889230 You might also ask at the EDNF Inspire Online Community, http://www.inspire.com/groups/ehlers-danlos-national-foundation/. Doctor struggles are a huge component of EDS, there are no easy answers. There are few specialists. The best you can do for yourself is learn all you can manage about EDS, and find doctors and nurses who are smart enough to realize they don't know anything, humble enough to learn from you, and compassionate enough that they don't burn out. EDS is difficult to treat because there is no cure, and many doctors went into medicine to cure people; they don't always realize that simply helping us by managing symptoms makes a huge difference in our lives, even if we're never cured. There aren't as many as there should be, but every one that learns from you will be able to help not only yourself but any other EDSers they have as patients. [Mark]

Irene S. answered: U don't need a new doctor just obtain the phaplets and all you can from the Association and give it to your doctor.. they like that.. its a challenge to them.. he will read all.. and keep in touch with the organization doctors should something go wrong or doctor talk.

Dolores L. answered: Dr. Levy at John HOPKINS IS A GREAT PLACE TO START