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The Oley Foundation
8 recommendations and reviews from 7 people
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Referral from
December 4, 2015
Feeding A. asked:From Denna: Hello, my 4 months old baby girl is getting surgery for her G tube placement Dec 9th.I would like to get any tips,advises about what to expect,etc. The doctor explained everything to us but I would like to hear from a parent's perspective. Thank you in advance.Sarah V. replied:What kind of tube? Stay on top of cleaning site, rotating (if appropriate) from the beginning. Don't be alarmed if there is some redness. You'll have to adjust clothing - i.e. cut holes in pajamas. Get good teaching on your feeding supplies - pump, syringes, bags. Know who to call if you have questions about them. Verify insurance coverage for the supplies (most likely) and use the Oley Foundation (www.oley.org) if you need additional supplies. My son got a PEG tube at 1.5 months and got a Mic-Key at 5 months. 6 months old now. Recovery from the surgery should be pretty quick.Laura M. replied:Oh! Also, the Oley Foundation has an awesome forum on Inspire where you can ask lots of questions and other tubies will answer!
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Referral from
July 22, 2015
Karen B. asked:There is a baby in the upstate that is g-tube fed and disabled. The family is in the process of getting TEFFRA. Until then, the baby needs Similac Alimentum. Does anyone have a surplus of this or know someone who does?Andrea B. replied:Not local, but they should be able to help. http://www.oley.org/
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Referral from
October 31, 2013
Blenderized T. asked:KHB wrote, "Does anyone have any suggestions of where to order 60CC syringes other than the Squirrel Store?"Samira G. replied:Check Oley.org. They have free supplies, when available.
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Referral from
July 4, 2013
Feeding A. asked:From Abigail Thornsberry: I am out of town in Somerset, PA and left home with out my daughters charger to her enteralite infinity pump. I called her Walgreen infusion pharmacy and they do not have an infusion pharmacy in the area. They would send me one but will be going home before it would arrive due to holiday. Is there anyone in the area that knows where I could find a charger or some one that lives close (by some miracle)that could charge it up? I was told I would not find one....Jill H. replied:Contact Oley Foundation - they have a supply exchange list and people willing to help out EVERYWHERE. oley.org
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Referral from
October 16, 2012
Steven E. asked:Has anyone had issues getting tube feeding supplies or service they need due to Medicare regulations?Feeding A. replied:(Traci) I can ask the group, however, many are parents of tube fed children and younger adult tube feeders. The folks at The Oley Foundation may have more information with regard to Medicare - I would check their site www.oley.org -
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Referral from
January 24, 2014
Feeding A. asked:From Denise Hodgson: does anyone have any suggestions to get the insurance to cover a IV pole for our son's wheelchair? the guy at bluecross was new and told me that it was considered a "cosmetic" accessory IE not medically necessary. how do I get the insurance to cover this? TIALaura T. replied:You might be able to get one from the oley foundation at oley.org They have people that post supplies they no longer need. You just pay shipping.
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Referral from
July 6, 2013
Feeding A. asked:From a parent: Just wondering if anyone knows where I can get bd oral syringes for g-tubes cheap? I keep asking my son's doctor but she says insurance doesn't cover it. I've got well over 10,000 caps which makes it easier for me since I can measure out my son's medicines for the next day at night after all my kids are asleep and I don't have to worry about distraction from my toddlers while doing it. *FTA note: she's looking for syringes smaller than 5mlLaura T. replied:Try oley.org
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